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I have narcolepsia

Topic status: answered

 » Health & Aids
Landesflagge: LC
blessed_girl
Topic creator
Posts: 10
HI there

Last time I've found so much support here in this forum so, I come to you again:

My doctor told me today that I have narcolepsia and that it will get worse by the time. Im so afraid now and i feel overwhelmed. I dont know what to do and how to take in that diagnosis.

Written on: 01/11/2010 [13:38]
Die Website für Menschen mit Behinderung und schwerer Krankheit / Community for disabled people
Landesflagge: VE
Claudia_2
Posts: 9
Hi Sweetie

Good to hear from you again after such a long time!
I am really sorry for you for the bad news! I dont know much about narkolepsia I only have seen a very interesting report by BBc, ill try to find it for you.
If you find any other "sleeping beauties" icon_wink.gif here, try to find a local self help group to find answers. It's always the best to talk to also concerned people.

Hugs
Written on: 01/11/2010 [14:32]
Die Website für Menschen mit Behinderung und schwerer Krankheit / Community for disabled people
Deleted user
Hi Bonny

I hope you're friends and family are close today so you get support from them too.
I have been searching the web for a local selfhelp group but I couldnt find any. But there is a narcolepsy network online: http://www.narcolepsynetwork.org/ which might help you with some answers. Anyway, we are always there for you!

Best wishes

Maggie
MyHandicap

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Written on: 01/11/2010 [14:39]
Die Website für Menschen mit Behinderung und schwerer Krankheit / Community for disabled people
Landesflagge: GB
kerstyn
Posts: 25
Hi there

I will pray for you!
Sometimes, we cant understand why certain things happen to us and the reason only disolve after a while, even years!
There is this saying that what doesnt kill us makes us strong. So, your narcolepsy is not funny or anything positive but it will make you a strong person.

Take one step after the next, dont try to get to all your personal goals at once! Get up in the morning and think of one goal you want to reach today. Set ambitious goals but realistic ones.

If you feel like talking, writing, you can always contact me or also Claudia per mail or phone.

All the best!!
Written on: 02/11/2010 [15:36]
Die Website für Menschen mit Behinderung und schwerer Krankheit / Community for disabled people
Landesflagge: JM
Kelly_J
Posts: 14
How are you, darling? Havent heard from you for ages! icon_cry.gif
All my love, Kelly
Written on: 24/04/2012 [14:08]
Die Website für Menschen mit Behinderung und schwerer Krankheit / Community for disabled people